Whisper Words of Wisdom Let it Be

A chronicle of my life, including the ups and the downs dealing with chronic pain and making it through graduate school. It is a way of bringing awareness to chronic pelvic pain disorders, two of which I have: Interstitial Cystitis and Pelvic Floor Dysfunction. Many women and some men suffer from these disorders, but they are not well known. This is a blog about my journey with these disorders, and about life in general. We only have one chance, so we better make the best of it.

Friday, March 11, 2011

Pain, pain, go away. Don't come again another day.

This has really been a rough week for me. On Monday I was dealing with terrible bladder spasms, that led until Tuesday, which led me to an emergency visit to the doctors office. They wanted to make sure that there was not an infection, which luckily there was not. So obviously it is just a bad flare. The pain and pressure has been excruciating the past few days. I was so down because I could not go to DC for a few days, but realize I would not have much fun feeling the way I have been. Plus to make matters worse, I came down with the stomach flu yesterday, which finally settled down. Must have been some sort of 24 hour bug.

My urologist is adding a new medication to my bladder instillation, it is a type of antibiotic that will act to ward off infections and hopefully help with other symptoms. I have had my pain medication dose increased, and have had to take it around every 4 hours. I try to go longer, but cannot seem to make it. Sitting in a car has been terrible. The doctors tell me to rest, but it is SO hard for me to do so. I usually run a few errands, and then come home and relax. Sometimes I try to clean up in the apartment and do things. Usually the only thing that helps me to feel better is to lay down perfectly still, but that is not the easiest thing to do daily.

I am frustrated because I was feeling so good, and then BAM, I get hit with another unforeseen flare. It is just hard keeping up with all of my medications. I just can't believe I am on so much. I wish I never had to go through this condition, and school. I am happy to have people who care and support me through this. I am sick of this...I just want something to keep this pain under control.

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